Cultural and Linguistic Competence in Family Supports

This policy brief discusses cultural and linguistic competence in family support for children and youth with special health care needs. The impact of family support is described for family financial resources, health and well-being of caregivers, and public policy. Given the diversity of families in the United States, providing family support that respects the culture, values, preferences, and needs of each family presents many challenges. Census data indicate that the United States has over 48 million persons who speak a language other than English at home. Issues related to literacy can undermine a family’s ability to care for and support their child or youth with special health care needs. The impact of caring for and raising a child or youth with special health care needs is also greater for racially and ethnically diverse families. A family’s willingness to interact with organizations providing support may be affected by experiences of bias, discrimination, and racism, immigration status, and English proficiency. Organizations that are not trusted by families cannot effectively deliver family support.